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The Ojibwe Rally raised over $1500 hundred dollars to benefit the Gift of Pain Charity.
Some of that money came from John Buffum who donated the proceeds from the sale of his book "In Like a Lamb Out Like a Lion". Jake Himes purposely checked in late to the park expo to pay the $100 fine to the charity.
Thank you very much to everyone!!!!
My daughter Gabby has an extremely rare condition called Congenital Insensitivity to Pain (CIPA). She doesn't feel pain at all. While this may sound like a benefit let me assure you that this is a horrible condition. Gabby has lost an eye and is legally blind in the other due to her scratching her own eyes. She had a broken jaw for a month before we figured it out. She has had several serious cuts and burns. When she started teething she would bite her fingers to the bone and chew on her tongue like it was bubble gum.
There are only about 100 cases in the world. We quickly realized that because the condition is so rare that doctors really don't know very much about it all. The only people with real knowledge of the condition were the families who had to live with it everyday.
Because no one else was trying to connect the families we started the charity with the initial goal of being a support group. We have used the media attention that we have received to help find as many families as we could. To date we have over 25 families around the world.
To date the charity has set up a website and publishes a newsletter; we are setting up a medical device lending library, and creating Gift of Pain ID cards. And we are about to start distributing funds to families to help pay for non covered medical related expenses.
The money collected will help us to continue the work we have started.
Thanks again to everyone involved in the wonderful sport of rallying.
If your interested in learning more the charities website is www.Gift-of-pain.org
Thanks again.
Steve Gingras
Some of that money came from John Buffum who donated the proceeds from the sale of his book "In Like a Lamb Out Like a Lion". Jake Himes purposely checked in late to the park expo to pay the $100 fine to the charity.
Thank you very much to everyone!!!!
My daughter Gabby has an extremely rare condition called Congenital Insensitivity to Pain (CIPA). She doesn't feel pain at all. While this may sound like a benefit let me assure you that this is a horrible condition. Gabby has lost an eye and is legally blind in the other due to her scratching her own eyes. She had a broken jaw for a month before we figured it out. She has had several serious cuts and burns. When she started teething she would bite her fingers to the bone and chew on her tongue like it was bubble gum.
There are only about 100 cases in the world. We quickly realized that because the condition is so rare that doctors really don't know very much about it all. The only people with real knowledge of the condition were the families who had to live with it everyday.
Because no one else was trying to connect the families we started the charity with the initial goal of being a support group. We have used the media attention that we have received to help find as many families as we could. To date we have over 25 families around the world.
To date the charity has set up a website and publishes a newsletter; we are setting up a medical device lending library, and creating Gift of Pain ID cards. And we are about to start distributing funds to families to help pay for non covered medical related expenses.
The money collected will help us to continue the work we have started.
Thanks again to everyone involved in the wonderful sport of rallying.
If your interested in learning more the charities website is www.Gift-of-pain.org
Thanks again.
Steve Gingras
